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Katrina victims birth Myracle but now need help!
About four months into my wife's pregnancy, we were told that the baby's (Myracle Caffi' Robinson) heart beat was low. Many tests were performed in Gulfport MS, at USA in Alabama, and at UAB in Birmingham. Myracle was diagnosed with Heterotaxy. We were told she would have to undergo several surgeries and they would be performed at UAB in Birmingham where she was supposed to be born at. The Sunday before the storm came, my family and I did not have a way to evacuate. Due to the Grace of God and our good neighbors, the lent us their second car to get out with. The car was too small for all five of us and the animals to fit in, so I stayed behind with the animals. We survived the hurricane praying all the way through while the trailer bounced up and down on the dirt foundation. I tell people all the time that if the dog wasn't saved before he is now! The damage we had to the trailer was too much to bring a newborn baby with heart problems to, but we had no other place to go. Myracle's expected due date was 12-30-05. My wife went into back labor on 11-08-05 while driving from an appointment in Alabama. I met her at Memorial Hospital in Gulfport where she had to be rushed back to USA in Alabama. My wife then caught an infection which the doctors could not get rid of. Scared of infecting the baby an emergency C-section was performed. Myracle was born premature on 11-11-05. Barely 24 hours after being born she underwent her first of three surgeries on her stomach and intestines which was not diagnosed earlier. During all this my wife and two daughters resided at the Ronald McDonald house in Mobile and my son and I stayed in our trailer in Gulfport, which had been damaged to the point where the only liveable room was the living room because of the hurricane. We lost possesion of our trailer and had to move to the Ronald McDonld house in Mobile with my wife and two girls. We were told that Myracle was too small to perform the surgery on at Birmingham, and it would have to be performed at Childrens Healthcare of Atlanta at Eggleston instead. We then secured an apartment in Warner Robins, Georgia because we were told Myracle would undergo one surgery immediately, one surgery at six months, and one surgery at two years of age. A cardiac catheterization was performed and it was determined that the surgeries could not be performed at all because her pulmonary arteries and veins were found to be abnormal. Myracle's records have been sent to Boston's Childrens Hospital for a second opinion and also to find a surgeon that can perform this extremely difficult surgery. They are trying to tell us that no surgery can be done and a heart transplant is not possible. My family and I are in a weird transition living in between Warner Robins and the Ronald Mcdonald house in Atlanta, which is close to the hospital. We are awaiting final word from the doctors in Boston that they can do this surgery. My wife (Kim) will travel to where ever the baby goes with our two girls and I will stay in Atlanta with my son. Because it was too much with the baby in the hospital and the other three kids with my wife to deal with and take care of alone, I was forced to leave my job at Keesler Air Force base in Mississippi and come to Atlanta, Georgia. I needed to take care of my family and help my wife deal with Myracles' ups and downs. Now I am searching for a job in Atlanta so I can be closer to my family.All the traveling back and forth has exausted us mentaly,physicaly and financialy but we keep our faith and we know that God is with us. My wife and I have decided to make available baby Myracle's records to any heart doctor that would be kind enough to look at them for a possible solution or any input whatsoever. We will update this webpage daily on baby Myracle's progess.
We can be reached at
The Robinson Family
792 Houston Mill Rd Rm K
Atlanta, Georgia 30392
(228) 229-4629
(228) 229-4630
Ronald McDonald House
USA Women's & Children's Hospital
Children's Healthcare of Atlanta at Egleston
Send E-Mail to: www.charles1964m@yahoo.com
Copyright © 2006 charles. All Rights Reserved